Not that I did it but I did get a good chuckle out of seeing Leigha stoned out of her tree. I was truly thankful that she was not in any amount of pain once they wheeled her out of surgery last week. My biggest fear was that she would be incredibly uncomfortable and that we would end up being sent home and have to deal with pain management somehow here at home. I am sure that no amount of Motrin or Tylenol could give any comforting effect after having your abdomen ripped open and then stapled back together again.
These were taken just after she had arrived onto the unit. She was settled in to the ISO unit, basically a ward style unit of 4 beds with kids all needing higher nursing care. We lucked out on day one having 2 older kids and one little guy with a trach. It was very quiet and we all managed to get a bit of sleep despite the whole crappy rocking chair for a bed thing.
I could not resist, the terrible mother that I am, and not take pictures of her in her stoned state of affairs. Once the nurses got her settled and I was no longer able to stay away I was at her side in about a blink and duck taped to her side for the remainder of the six days she was there, well not quite Neil came and stayed one night so I could go home and sleep apparently I began to talk nonsense so they sent me home where I crashed and slept 14 hours straight. I remember having a conversation with the secretary at Nathaniels school. she called at some horrid time because Nathaniel had not shown up for class like I had said he would (my MIL did not want to get up early to drive him over, she was tired and figured it was only Kindergarten and he was not going to miss much), I reached for the phone in reflex and only when it dawned on my who I was talking to did I clue in...our conversation went alot like this:
M: Hello,
S (being secretary :p): Hi, this is J calling ffrom Pope John Paul the 23rd calling in regards to your son Nathaniel...
M: Yes......what about him..
S: he is not in class today we are wondering if you are running late or if he is not coming today.
M: (now here is where I get really brilliant in the mornimg): but its only Thursday and I said he was not going to be back until Friday..
S: it is Friday..
M: No it isn t
S: Yes its Friday Novemebr 20th
M: No!! its only the 17th (see how smart I am after 3 days of no sleep I cant even remember what day of the week it is let alone what the date is).
S: ( with questioning voice) Ummm, no its the 20th today, so does that mean that Nathaniel wont be in class today
M: Well... if he isnt there by now I wouldn t expect him. I dont have him here with me, he is over at his grandparents, and if they haven t shown up with him by now then they aren t planning on it. He will be back on Monday for sure.
S: (now very confused) oh kay...
M: Nathaniels sister had surgery on Tuesday and that has kind of turned our house upside down, things should be back to normal by Monday.. thanks for calling
And then I very nicely hung up the phone and fell back asleep for another 3 hours :p
So after spending the requisite 5 days in hospital that we had been told about in our consult I was a bit perterbed when our surgeon came in on Sunday morning and annouced that we had to stay in one more day. And that would be the whole Morphine and feeding tube schedule debacle.
So that brings us to our discharge on Monday. Once I finally managed to get the pump for the tube feed, which only took 4 hours unlike last time that took 6, we were out like a shot. We arrived home by 1, I had Leigha in her crib attatched to the pump by 130 and I was in bed tucked in like a burrito by 145. It was so nice to be in my own bed again. We slept very nicely until about 6 when Neil got home where upon he very kindly got Leigha up and took her over to his parents for a bit while I slept off the massive headache that arrived somewhere between my arrival home and waking up at 6.
I was up by 730 and back to bed by 9. It was wonderful and the next day I was coniving ways to bribe the boys into letting me take a nap without them killing each other while I did it. I figure I could sleep a week and still not be caught up.
Im thankful that kids are fast healers, by Thursday she was up in bed smiling and laughing and kicking the tv over the bed with her feet. It takes alot more than surgery apparently to keep this one down.
So once I finally got Leigha to let me look at her stomach with out yelling OWIE!!! everytime anyone even touched her (not that I blame her AT ALL), I was able to get a shot of the actual thing. It doensèt look to bad all things considering. We expected alot worse. The only clinch is that the tube from where it inserts her stomach, it has to remain upright for about half inch or else it will elongate the hole that the button will be inserted into, and thus mess the whole thing up. Right now we have noticed that the way the tube naturally wants to go is to the left and we can already see the tube beginning to make a ovlal shape on that side. I have booked an appointment with our pediatrician on Tuesday so will ask about it then. Neil and I vividly remember them saying to keep the hole round so that it doesnèt leak, I èm not sure how to do that with a kid who can move and pull on it.
The day before our discharge Neil got a picture of the two of us together in the room. With her being on continuous feeds it was difficult to go anywhere with her at all and more so to keep her entertained in the room. She wanted to move and how do you keep a 17 month old busy when they dont exactly watch tv.
Last night she started vommiting. I was told that once she had the fundoplication she wasnt supposed to be able to do that anymore due to the banding around her stomach. So when she woke up this morning and was still doing it I did what any mother would do and called the doctors. Of course it was luch and I had to wait.
Once I finally got in I was put right in to see the doc covering for our pediatrician (Dr Teoh, he is asian and usually dyes his mohawk funny colors to impress the kids) while she is away this week. He is great and reassured me that she probably has the stomach flu but it isnt worth worrying over. Im not worried as long as it isnt a complication from the fundo, I can deal with the flu. Heck the flu is nothing in comparison to the multiple pneumonias, cold and other bugs she has had over the last 17 months of her life.
As long as she isnt running a fever higher than 38.5 then we can keep her at home on clear fluids and half strength formula. If it gets any worse we have to go directly to the Stollery ( my very favorite place :p)
and take it from there. I think they will decide what to do if it comes to that. Probably Xrays and bloodwork Not sure how they do xrays on kids with g-tubes as they cant put her in a clam shell.....not my problem or worry right now. But I did wonder how they did it as we sat and waited afternoon. For now we have started her on Peidalyte and part of her Pediasure to fill her stomach a bit and Ièm hoping that by the weekend she will be on the mend. Then the last hurdle will be to find a sitter and I can look at going back to work.
I will appologise for the paragraphing down the page, not sure what happened but when I uploaded the pictures my typing went all wonky and I really don/t feel like spending 2 hours trying to figure it out. That and Leigha pushed some button on the computer that has turned off the question mark and the appostrophy and made them into french accent markers, have no clue how to fix that either, you will have imagine that all the words that should have an appostrophy have them and well the questions...same thing. :p
As Im re-reading this I noticed that it is all over the place and not in order. Forgive me for babbling. I know you are all brilliant people who will have absolutly no trouble at all figuring it all out. I know you all only came here for the pictures anyway;) I did go bakc and check most of the spelling and grammer, thats not to say I didnt miss about a million of them, but just turn your head sideyways then it will all look normal and make more sense to you. It works for me anyway.